Psori what now? Yep, that was me roughly a year ago. I had been feeling really tired, like complete fatigue tired. Thought it might be my job, I’m a Primary School Teacher, but then I had this weird pain in my thumb on my left hand-side. My cat had scratched me there, quite deeply, and I assumed that’s why it was sore but very quickly I realised it was something else, especially when I noticed that my fingernails started pitting. Before I visited my Doctor I did what most people do – turned to Web MD to check out my symptoms and the one that kept coming back was Psoriatic Arthritis. I should mention at this point that I had been dealing with Psoriasis on my scalp but hadn’t linked the two until I searched, mainly because I had never heard of Psoriatic Arthritis before.
After this, it was quite a quick process for me – I was lucky. From referral in January until official diagnosis in March I was in a constant state of pain. Finally in April I started my journey into medication, I’ve been started with Methotrexate, which is a disease-modifying anti-rheumatic drug, which lowers your immune system (a fun thought when you work with children – though I have found that my immune system seems to be fighting off most illnesses so far!)
My main side-effects have been a queasy feeling after I take my medication and it can sometimes exaserbate my fatigue, I can have days where I’m on a go-slow where it will take me longer than usual to do anything and some days where I will just have to stay in my bed for most of the day. I think the spoon theory is one of the best ways to describe it for me. As with any auto-immune disease, sometimes called ‘An Invisible Disease’ the most frustrating thing is that people can’t see it. They see someone who is 33 years old, who should technically be ‘fit’ but I’m walking slowly, or having to stop and is perhaps sitting down in a seat that I’m ‘not’ meant to be in. The list of frustrations could keep coming but I try to stay positive. I’m a member of a few groups on Facebook and I can’t believe how lucky I am comparatively, at the moment my Psoriatic Arthritis is still relatively managable. If you have any questions about it fire them my way. Do you have any auto-immune diseases?